Media


‘We’re being let down by our government’

November 23, 2015

Brantford Expositor

Brantford mother of EDS patients backs campaign seeking provincial help for people with rare diseases.

More government support urged for people with rare diseases

November 23, 2015

Toronto Sun

VIDEO: PC MPP Michael Harris, for Kitchener-Conestoga is urging the provincial government to create a select government committee to address the double hurdles of diagnosis and treatment.

Tory MPP wants more help for sufferers of rare diseases

November 23, 2015

Toronto Star

MPP renews push for better care of Ontarians with rare diseases who often can’t get a proper diagnosis or drugs

MPP wants to create an Ontario all-party committee on rare disease treatment

November 23, 2015

Newstalk 610 CKTB

Michael Harris says people who suffer from rare diseases have endless hurdles, from getting a correct diagnosis in the first place, to specialist referrals, to medication and out-of-country treatment.

Glimmer of hope for EDS families after meeting with Ontario health minister

October 28, 2015

Brantford Expositor

Ehlers-Danlos syndrome patients were given a voice Wednesday when “two brave young women” spoke directly with Minister of Health Eric Hoskins about what EDS has done to their lives, health and families.

Family taking petition to health minister

October 28, 2015

Brantford Expositor

A petition with more than 8,100 signatures will be dropped on the desk of Health Minister Eric Hoskins on Wednesday as part of an effort to push the Wynne government into funding out-of-country treatment for Ontario patients with Ehlers-Danlos syndrome.

Ontario to help people with rare disorders

October 28, 2015

The Record & The Canadian Press

Erika Crawford, 20, of Brantford and Brooklyn Mills, 22, of Oakville, both suffer from Ehlers Danois Syndrome, or EDS, a genetic defect in the connective tissue that provides supports to many body parts including skin, muscles and ligaments.

Women take plea for help to Queen’s Park

October 28, 2015

Toronto Sun

Brooklyn Mills and Erika Crawford came to Queen’s Park to plead with Health Minister Eric Hoskins to fund their out-of-country treatment.

Oakville’s ILC Foundation, Ehlers Danlos Syndrome sufferers petitioning Province for support

October 27, 2015

Oakville Beaver

Since its inception, the Oakville-based ILC Foundation has been assisting families living with chronic diseases in getting the provincial government to support the treatments of those conditions.

Drugs for rare diseases too hard to get, Ontario Tories say

May 27, 2015

Toronto Star

Ontario’s system of funding breakthrough drugs for rare diseases should go back to the drawing board, Progressive Conservatives said as the government agreed to review the criteria for one $70,000 medication.



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