D’Amato: Any of us might get seriously ill. Will treatment be there?

February 25, 2016

Waterloo Region Record

Of course governments are concerned about rising costs of drugs and treatments. But people living in Ontario should have the right to feel secure that they have decent health care, no matter how bad their luck might be…It’s a good idea and it deserves the support of all parties.

My rare disease left me forgotten: Sudbury woman

February 19, 2016

Sudbury Northern Life

If Danette Hillier could describe her life with one word, it would be “forgotten.”

After her daughter was born in February 2007, Hillier started to experience constant and intense pain, and had trouble sleeping even a few hours without waking up regularly. The next year her condition deteriorated to the point she had to quit her job as a geologist.

Campaigning for provincial help in treating rare diseases (video)

February 19, 2016

CTV Kitchener

People and families who suffer from rare diseases are looking for some help from the province. For those battling rare diseases treatment isn’t straightforward and often costs a lot of money out of pocket, especially in Ontario.

Campaign to treat rare diseases hits Hamilton

February 10, 2016

Hamilton Spectator

Jessica Fournier finally has a spark of hope. Maybe someday, something can be done about her seven-year-old son Thomas’ Dravet Syndrome, a severe form of epilepsy. Fournier was among 46 people with rare disease experience who met in Hamilton Tuesday with Kitchener-Conestoga Progressive Conservative MPP Michael Harris — who is touring Ontario with his fight for provincial funding for rare diseases treatments.

Rare Disease Treatment

February 9, 2016

CTV Northern Ontario

Coverage from #TreatRareDisease Roundtable in Sudbury.

MPP calls for panel to help treat northerners with rare diseases

February 9, 2016

CBC News & Radio

There appears to be some political will to get help for northern Ontarians dealing with rare diseases affecting their health following a roundtable discussion Monday in Sudbury. Kitchener-Conestoga MPP Michael Harris says ‘there’s clearly a problem within the system’ if people are forced to travel long distances for health care.

MPP wants to keep patients from falling through the cracks

February 9, 2016


People living with rare diseases often lack of support and access to treatment, says Michael Harris
If you’ve never heard of atypical hemolytic-uremic syndrome, or phenylketonuria, you’re probably not alone. Both are rare diseases that only affect a small fraction of Ontarians.

MPP Michael Harris makes a stop in Hamilton for roundtable on rare diseases

February 9, 2016


Ontario MPP Michael Harris heard from Hamiltonians today on his province wide tour to develop better care for those diagnosed with rare diseases.

More Support Needed For Those With Rare Diseases

February 8, 2016

KISS Sudbury 105.3 FM

A Kitchener M-P-P was in Sudbury today looking for support for people who have rare diseases. Michael Harris says the government needs to increase funding for these people who often have bills in the hundreds of thousand of dollars because many treatments are not covered

Women speak out at rare disease roundtable

February 8, 2016

Sudbury Star

Danette Hillier and Brenda Cunningham had never met before they attended a roundtable on rare diseases Monday, nor did they know much about each other’s disease. But after speaking publicly about how their illnesses have affected their lives, the women have discovered they share a deep bond.

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