Ehlers-Danlos, Chiari Malformation & cervical instability
I am a 30 year-old female with Ehlers-Danlos, Chiari Malformation, and cervical instability. Despite many years of illness, it was not until recently that I was properly diagnosed. Unfortunately, this diagnosis did not come from a Canadian doctor. While my condition is incurable there are treatments to help minimize symptoms, however, these and treatments are not covered by provincial health insurance. They therefore remain accessible to me.