Media


‘Rare disease’ views need change

November 27, 2015

Brockville Recorder

Jessica Smith-Covey said she was happy to hear MPP Michael Harris call this week for an all-party committee to form a comprehensive strategy on rare diseases, such as Ehlers Danlos Syndrome (EDS). She hopes the issue will finally be taken seriously.

Real action needed

November 27, 2015

Letter to the Editor – The Record

Having very recently been diagnosed with a rare disease, I would like to applaud Kitchener-Conestoga MPP Michael Harris on his call to set up a provincial all-party committee to look at the treatment of rare diseases.

PC MPP proposes rare disease committee

November 25, 2015

New Hamburg Independent

…three people came to the Ontario legislature Monday as representatives of the recent wave of rare disease sufferers who had pleaded with the government for help, and who are now looking for a comprehensive strategy.

PC MPP proposes rare disease committee

November 24, 2015

The Record & Simcoe.com

A woman whose immune system is attacking her body’s cells — one of only about 30 people in Ontario with the condition. A mother who took her children to the United States so they could regain some mobility lost due to their rare connective tissue disorder. A man whose rare condition went undiagnosed for 32 years until he took research into his own hands.

Those three people came to the Ontario legislature Monday as representatives of the recent wave of rare disease sufferers who had pleaded with the government for help, and who are now looking for a comprehensive strategy.

Local MPP proposes Ontario all-party committee on rare disease treatment

November 23, 2015

570 News

A Progressive Conservative MPP is calling for a provincial all-party committee to look at the treatment of rare diseases. Michael Harris says people who suffer from rare diseases have endless hurdles, from getting a correct diagnosis in the first place, to specialist referrals, to medication and out-of-country treatment.

Queen’s Park Media Conference #TreatRareDisease

November 23, 2015

Queen’s Park Media Studio

Joined by parents and sufferers impacted by rare disease in the Queens Park Media Studio, Harris called on government to support his private members motion to strike a Select Committee into Rare Disease treatment in Ontario.

Harris Calls For Ontario to Treat Rare Disease

November 23, 2015

CTV Kitchener

VIDEO: Harris Launched #TreatRareDisease Campaign

Health minister says he wants to find ways to help EDS patients

November 23, 2015

CTV Kitchener & The Canadian Press

Health Minister Eric Hoskins says he’s been moved by the stories of two young Ontario women with a rare disorder and wants to find ways to help them medically and financially.

‘We’re being let down by our government’

November 23, 2015

Brantford Expositor

Brantford mother of EDS patients backs campaign seeking provincial help for people with rare diseases.

More government support urged for people with rare diseases

November 23, 2015

Toronto Sun

VIDEO: PC MPP Michael Harris, for Kitchener-Conestoga is urging the provincial government to create a select government committee to address the double hurdles of diagnosis and treatment.

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